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Open Access Research

Experiences and barriers to Health-Related Quality of Life following liver transplantation: a qualitative analysis of the perspectives of pediatric patients and their parents

David B Nicholas12*, Anthony R Otley3, Rachel Taylor4, Anil Dhawan5, Susan Gilmour6 and Vicky Lee Ng7

Author Affiliations

1 Research Institute, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada

2 University of Calgary, Faculty of Social Work, Central and Northern Alberta Region, Edmonton, Alberta, Canada

3 IWK Hospital, Dalhousie University, Halifax, Nova Scotia, Canada

4 Department of Children's Nursing, Faculty of Health & Social Care, London South Bank University, UK

5 King's College Hospital, London, UK

6 Stollery Children's Hospital, University of Alberta, Edmonton, Alberta, Canada

7 SickKids Transplant Centre, The Hospital for Sick Children, University of Toronto, Toronto, Ontario, Canada

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Health and Quality of Life Outcomes 2010, 8:150  doi:10.1186/1477-7525-8-150

Published: 22 December 2010

Abstract

This paper examines health-related quality of life (HRQOL) experiences and barriers facing young people who have received a liver transplant (LT). Semi-structured qualitative interviews were conducted with children and adolescents who have undergone LT and their parents. Findings indicate that LT fosters substantially improved child and adolescent HRQOL; however, young people also experience challenges such as difficulties with medication compliance, self-management of care routines, physical activity restrictions, and undesirable medical procedures. Implications and recommendations for clinical practice and research are discussed.