Table 1

Characteristics of children with chronic health conditions. Argentinean Spanish Validation of the PedsQL™ 4.0 Generic Core Scales.


Age Group





2–4
years old
n = 70
5–7
years old
n = 62
8–12
years old
n = 90
13–18
years old
n = 65
TOTAL
N = 287

Patient gender





Female
41.5%
39%
42%
46%
42%
Male
58.5%
61%
58%
54%
58%
Proxy respondent





Mother
80%
76%
70%
61.5%
72%
Father
14%
14.5%
20%
9.5%
15%
Other
6%
9.5%
10%
29%
13%

Chronic condition





SCT1(n = 40)
7%
8%
16%
25%
14%
COPD2 (n = 53)
24%
29%
14%
8%
18%
HIV/AIDS3(n = 57)
19%
24%
19%
18%
20%
Cancer (n = 56)
21%
20%
18%
20%
20%
ESRD4(n = 31)
3%
3%
18%
17%
11%
CCC5(n = 50)
26%
16%
15%
12%
17%
Time since diagnosis in months, median (range)
28 (1–60)
63 (1–84)
89 (1–148)
95 (2–204)
48 (1–204)

Socio-Demographics





Education





Child below appropriate for age
-------
11%
29%
34%
25%
Proxy did not complete elementary school
3%
11%
4.5%
15.5%
11%

Below the poverty line6
67%
71%
65%
60%
66%
No health Insurance
67%
61%
44.5%
46%
54%

1Stem Cell Transplant 2Chronic Obstructive Pulmonary Disease 3Human Immunodeficiency Virus infection or Acquired Immune Deficiency Syndrome 4End Stage Renal Disease 5Complex Congenital Cardiopathies 6Poverty line is calculated according to total income, and number and age of people in the household, as per National Institute of Statistics and Census (INDEC) guidelines.

Roizen et al. Health and Quality of Life Outcomes 2008 6:59   doi:10.1186/1477-7525-6-59