|
Socio-demographic and RB-related information on the total group, and for RB survivors aged 8–11 years and 12–18 years separately |
|||
| RB survivor total group (N = 65) |
RB survivors, children (N = 28) |
RB survivors, adolescents (N = 37) |
|
|
|
|||
| Age (yrs) (mean (SD)) |
12.7 (2.9) |
9.8(0.9) |
14.9 (1.6) |
| Age at diagnosis (yrs) (mean (SD)) |
1.6 (1.6) |
1.2 (1.3) |
1.8 (1.8) |
| Gender (n (%)) |
|||
| Female |
31 (48%) |
15 (54%) |
16 (43%) |
| Education (n (%)) |
|||
| Mainstream |
57 (88%) |
23 (82%) |
34 (92%) |
| Special |
8 (12%) |
5 (18%) |
3 (8%) |
| Hereditary RB (n(%)) |
|||
| Non-hereditary RB |
35 (54%) |
12 (43%) |
23 (62%) |
| Hereditary RB |
30 (46%) |
16 (57%) |
14 (38%) |
| Laterality RB (n(%)) |
40 (62%) |
14 (50%) |
26 (70%) |
| Unilateral RB |
|||
| Treatment RB (n(%)) |
|||
| Enucleation |
39 (60%) |
14 (50%) |
25 (68%) |
| Radiotherapy |
10 (15%) |
4 (14%) |
6 (16%) |
| Combi enucleation + radiotherapy |
13 (20%) |
8 (29%) |
5 (13%) |
| Chemo/laser/plaque |
3 (5%) |
2 (7%) |
1 (3%) |
| Visual acuity (n(%)) |
|||
| Normal vision |
54 (83%) |
22 (79%) |
32 (86%) |
| Low vision and blindness |
11 (17%) |
6 (21%) |
5 (14%) |
| Life events (n(%)) |
|||
| None |
18 (28%) |
10 (36%) |
8 (21%) |
| Life events |
46 (71%) |
18 (64%) |
28 (76%) |
| Missing |
1 (1%) |
1 (3%) |
|
| Marital status parent (n(%)) |
|||
| Single-parent family |
20 (31%) |
6 (21%) |
14 (38%) |
| Child living with both parents |
45 (69%) |
22 (79%) |
23 (62%) |
van Dijk et al. Health and Quality of Life Outcomes 2007 5:65 doi:10.1186/1477-7525-5-65 |
|||