Table 4

RCC Index Mean Relevancy Item Scores of RCC Patients and Clinicians1
Item
 Patient Ratings
 Clinician Ratings


Localized
 Metastatic
 Total
 Nurse
 Physician
 Total
PAIN





     I have pain
 2.4
 1.8
 2.1
 3.8
 4.0
 3.9
     Pain interfered with my daily activities
 2.0
 1.8
 1.9
 3.8
 3.2
 3.5
     I have pain in my back
 2.0
 1.1
 1.5
 2.4
 2.6
 2.5
     I have discomfort or pain in my stomach area
 1.7
 1.8
 1.8
 2.6
 1.8
 2.2
BREATHING





     I have been short of breath
 0.7
 2.5
 1.7
 3.8
 3.0
 3.3
WEAKNESS





     I have felt weak
 2.2
 2.8
 2.5
 4.0
 3.6
 3.8
MOOD





     I worry that my condition will get worse
 3.0
 3.1
 3.1
 3.6
 2.4
 3.0
     I have emotional ups and downs
 2.6
 2.2
 2.4
 3.6
 1.6
 2.6
     I feel depressed
 2.6
 2.0
 2.3
 3.6
 1.8
 2.7
     I am able to enjoy life2
 2.2
 2.8
 2.5
 3.8
 3.0
 3.4
SLEEP





     I have had trouble sleeping
 2.5
 2.1
 2.3
 3.6
 2.4
 3.0
WEIGHT LOSS





     I am losing weight
 1.4
 2.0
 1.7
 3.5
 3.6
 3.6
COGNITIVE





     I have difficulty remembering things
 1.6
 1.6
 1.6
 3.5
 2.0
 2.7
     I have trouble concentrating
 1.7
 2.1
 1.9
 3.5
 2.0
 2.7
FATIGUE





     I feel fatigued
 2.3
 2.0
 2.2
 3.8
 3.8
 3.8
     I have a lack of energy
 2.4
 2.5
 2.5
 3.8
 3.2
 3.4
     I feel tired
 2.3
 2.1
 2.2
 3.8
 3.0
 3.3
     I have trouble starting things because I am tired
 1.7
 2.1
 1.9
 3.0
 2.0
 2.5
     I have trouble finishing things because I am tired
 1.9
 2.4
 2.2
 3.0
 2.0
 2.5
APPETITE





     I have lacked appetite
 1.5
 1.9
 1.7
 3.6
 3.6
 3.6
     I have a good appetite3
 2.5
 3.1
 2.8
 3.0
 3.4
 3.2
INCONTINENCE (BOWEL OR BLADDER)





     I have control of my bowels4
 2.4
 2.5
 2.5
 2.2
 1.6
 1.9
     I have trouble moving my bowels
 1.6
 1.3
 1.5
 3.6
 2.2
 2.9
     I urinate more frequently than usual5
 1.7
 1.7
 1.7
 2.2
 1.6
 1.9
     I have difficulty urinating
 1.6
 1.2
 1.4
 2.4
 1.6
 2.0
OTHER SYMPTOMS





     I have had chills
 1.4
 1.8
 1.6
 3.4
 2.6
 3.0
     I have had fevers
 1.3
 1.5
 1.4
 3.8
 3.0
 3.4
     I have had sweats6
 1.2
 1.1
 1.1
 3.8
 3.2
 3.5
     I feel lightheaded
 1.6
 1.7
 1.6
 2.8
 2.6
 2.7
     I am bothered by blood in my urine7
 n/a
 n/a
 n/a
 2.0
 2.8
 2.4

1 Relevancy scores based on a scale of 0–4, where 0 indicated "not at all " relevant and 4 indicated "very much" (or highly) relevant.

2 "I am able to enjoy life" was slightly modified for clinicians for testing purposes; item tested was "I am content with the quality of my life right now".

3 Not included due to redundancy with the other appetite item and incompatible direction of question phrasing (positive).

4,5 Not included due to uncertainty regarding causation: disease or treatment, as well as biological rationale.

6 Modified from "I am bothered by sweating" for clarity and consistency with other items.

7 Relevancy ratings not available since item was included based on findings from patient interviews

Harding et al. Health and Quality of Life Outcomes 2007 5:34   doi:10.1186/1477-7525-5-34