Table 1

Demographic and clinical characteristics of sample (n = 185)
Characteristics Mean (SD) or N (%)
Age (y) 42.8 (10.0)
Women/Men 137/48 (74/26)
Definite MS/CIS 170/15 (92/8)
Year since diagnosis 6.2 (3.6)
EDSS, median (IQR) 2.0 (1.0 - 3.5)
On DMT/Not on DMT/No information 110/19/56 (59/10/30)
Patient Generated Index* 0.50 (0.25)
EQ-5D** 0.69 (0.18)
SF-6D*** 0.69 (0.13)

SD, standard deviation; N, number; CIS, Clinically Isolated Syndrome; EDSS, Expanded Disability Status Scale; IQR, Inter-quartile range; DMT, Disease Modifying Therapies.

*Transformed to a scale from 0 to 1, higher scores are better (1 = perfect QOL).

**Measured on a scale from −0.4 to 1, higher scores are better (1 = perfect health).

***Measured on a scale from 0.3 to 1, higher scores are better (1 = perfect health).

Kuspinar and Mayo

Kuspinar and Mayo Health and Quality of Life Outcomes 2013 11:71   doi:10.1186/1477-7525-11-71

Open Data