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Life at the end of life: beliefs about individual life after death and "good death" models - a qualitative study

Franco Toscani1*, Claudia Borreani2, Paolo Boeri2 and Guido Miccinesi3

Author Affiliations

1 Lino Maestroni Institute for Research in Palliative Medicine, Via Palestro 1, 26100 Cremona, Italy

2 Psychology Unit, National Cancer Institute, Milan, Italy

3 Epidemiology Unit, Centre for Study and Prevention of Cancer, Florence, Italy

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Health and Quality of Life Outcomes 2003, 1:65 doi:10.1186/1477-7525-1-65

Published: 7 November 2003

Abstract

Background

Different ideas of "good death" may influence the effectiveness of end-of-life care in patients with different ethos. This study aimed to identify the influence of believing in individual life after death on "good death" models.

Methods

Semi structured-interview to 8 persons, 4 believers and 4 non-believers in individual life after death from the general Italian population. Analysis of the transcribed text according to the method suggested by Mc Cracken.

Results

The analysis has shown a diverse and coherent conceptualization of death according to whether the subjects believe or not in individual life after death. Believers, for whom death marks the passage to a new dimension, prefer to be unaware of dying, while non-believers, for whom death is the end of the individual, prefer to be conscious until the very end of life. However some important aspects in common have been identified, i.e. having close people nearby, receiving assistance from experts, or the preference for a soft atmosphere around the dying person.

Conclusion

There are aspects in common and aspects in contrast between believers and non-believers in individual life after death: while sharing many aspects of what a "good death" ought to be, they have opposite stands on being aware of dying. A plurality of models should be foreseen, accepting, in this case, their practical and theoretical implications.

Keywords:
good death; end of life; life after death; awareness